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Showing posts with the label Ignorance

Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com
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Knowledge Pros and Cons

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Sometimes I'm not really sure if it is better to be a patient who is very knowledgable of their disease and similar diseases or if it's better to not know. It sounds odd but each end of the spectrum has it's pros and cons and I know each very well. Sometimes even a happy medium still has more problems than it's really worth, but you can't take back much knowledge. Being a bit of an expert of my disease has lots of pros. I actually know what my doctor is talking about and can catch onto a lot of things before he says it. For example, last time I saw him he checked a bunch of tender points on my back and chest asking if they hurt. When he finished, I said "Did you honestly   just check me for fibromyalgia?" "No- yeah, I did." And I'm aware of why he does certain things- for example, sending me for an EKG when my heart was beating too fast or why my kidney problems are such a concern. Knowing a lot about your disease also means you are aware o...
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