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Showing posts with the label commumication

Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com

Arthritis World vs. 'Normal' World

I suppose you could compare being chronically ill to being a bird in a cage. The bird wants to soar high in the sky, but the cage keeps you away. Having a chronic illness is similar: you want to soar but you're too sore. Or, you know, sick or something. It doesn't really matter what's holding you back, it's the fact something is. But the cage is also a symbol of something else: How different your life is compared to the lives of others. I forgot what it's like to be healthy. I cannot tell you what 'healthy' life is like. I assume it's a lot like life now except without pain, hospitals, missing out and planning around abilites. I also assume you fit in better with the 'healthy' world. But I don't know for sure. The 'healthy world' and 'chronically ill world' are very different. I'm always reminded how different they are by people's reactions to my 'arthritis' talk. Sometimes I'll tell them what's happe...

How to Get a Doctor to Listen

"How do you get a doctor to listen to you?" This is the ultimate question. The answer is so rare and secretive, that is it priceless. There is just one secret statement that will make a doctor listen and that statement is.... Well. It's more complicated than that. It's hard to believe but doctors are real people. And like the general population, their personalities differ. You're going to get along with some and you will not with others. Some people are introverts and others are extroverts. We all have our good and bad days. Doctors are like teachers: You loved some and hated some, some loved you and others didn't. And it was for many different reasons. Some saw your potential, and others passed you off as nothing special. And it doesn't mean much at times. For example, Teachers said John Lennon would go nowhere. It's the same basic idea with doctors. First, we have to realise that some people are better at listening than others. This and other p...