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Showing posts with the label Bestfriend

Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com

I'm Back Once More

Hello again. I've been home from holiday for a few days now, and ready to write about what has been going on. What I wrote in my last post was actually regarding my best friend, of whom also has arthritis. Her medicines, as well as mine and most other's, have a risk of cancer. We had a 'cancer scare' a few days ago, as  she needed a biopsy  to check for Lymphoma. After waiting a few nerve wracking days of waiting  for results, we found she does not have cancer. It was a huge relief, naturally. However now I'm going through  a medical scare of my own. I've demonstrated quite a few symptoms  of thyroid and kidney problems. In the past few days home, I've gone through several tests and shall go  for more tomorrow before seeing a specialist the day after. At the moment, I am alright. It was not quite that way at the doctor's office when we recieved this news. And it's still quite heart breaking for  my family and friends. Right now, I'm trying not...
Yes, I have already posted about touch before but this is quite different. Yesterday evening I was at a party and I was dancing with some friends when someone pulled out a camera. Not wanting to be in the picture, my friends began hiding behind each other or pushing one another into the lense. I don't know how I got involved but they started touching my back, trying to shove me into the lense. I snapped at them not to touch my back as it really did hurt. But they didn't stop even when I tried to get away from the group. Finally someone did it: the one touch that hurt so badly, I stormed off and sat with my head cradled in my hands with my back arched. My mum knew I was in pain and tried to calm me down, and the mother of my best friend (my friend has arthritis) looked as if she was ready to kill (not literally) my friends. Honestly, it wasn't all my friends and they didn't mean to hurt me but I have told them many a time to never, ever poke my back, grab my shoulder f...

You Can Pick Your Friends, but You Can't Pick Your Family

Some think they can. Even I do. Sometimes when I'm with my cousins I pretend we're siblings. I do actually have siblings but all of whom are much older than me. So when I 'm around family my same age, I like getting the feeling of being a big, happy family. Though I am content being a litttle, happy family :) . However there is one girl I wish was my sister. She is my best friend and we are two year apart in age (she being my elder). Also a great distance keeps us apart. We know each other very well and rarely see each other, often taking to Skype to talk everyday. We've laughed together and we've cried together. Never have I ever had a friend who knows me like she does. She has her own Arthur as well, but her's is the rheumatoid type in several of her joints. She often flares and is sick, and has numerous other medical problems. She is my biggest inspiration as she keeps on living through this. Often I wish I could be with her, and I wish I could be there for...

Happy Happy Joy Joy... Sore

I'm definatly in a holiday rush. A little stress yes, but that is mostly from school. I'm too busy to be stressed! I'm pumping out paintings for the family like mad, trying to do homework, decorate, keeping human contact, and trying to enjoy myself. Of course, this has brought (as expected) soreness and more fatigue. I'm dropping dead in my bed later at night than I would like because I can't even pull myself off the couch. My rheumatologist put me on a pain reliever everyday but I'm wondering when it will work... My bestfriend (who lives very far away from me and also has her own Arthur) is dealing with some boyfriend problems and I've been feeling guilty because I can't help her much. :( Recently too I've learned to stop caring what people think of me. It works well too (so long as you're not having a bad hair day). I move awkwardly because of Arthur and I've come to accept that. I have a hard time making eye contact because I'm ve...