The Girl With Arthritis

Recently one YouTube, a very well known Youtuber did a video talking about what he is most afraid of. He said that since he is an atheist, death is the scariest thing for him. Imagining nothingness for eternity scares him a lot. Many people agreed, saying that death is their fear because of it. How I see it, they probably don't actually fear death itself, they fear nothingness. Every fear we have tends to be for a bigger reason, and some of them come for bigger reasons. For example, I don't like the dark. It's not that I fear the darkness itself, it's that I fear there is danger I can't see. But that's not my 'biggest fear.' I suppose you could say fear is pain. It sounds funny from a person who's had arthritis since before they could remember but it's true. I am actually afraid of actual pain, but there is more to it. I'm afraid of what's happening to cause the pain. I'm afraid something is wrong. I'm horribly afraid of suffe...

Recently I was asked who one of my heroes is. That got me thinking about the true meaning of a hero. I'd like to share my thoughts on heroes, as well as one of mine. For lots of people, a hero is a firefighter carrying a small child out of a burning building. Others choose to recognise politicians, athletes and scientists as heros. For me, it's not always the actions that define a hero:  It's  their admirable qualities, that often lead to these brave and moving actions. As a teenager, it can be difficult to find people- heros- to look up to and who are relatable. Which is why Hank Green is a hero to me.  Hank is a famous YouTube Star, most notably known for collaborating with his brother John for the  Vlogbrothers . Hank also has his own line of channels and series celebrating his love of science and Jane Austen novels. My hero is a self proclaimed nerd. I admire that he is simply says what he means and doesn't care what others will say about him. His confi...

Recently whilst on YouTube, I came across several videos that are supposed to help children cope with going into hospital and getting tests. They are usually live action and consist of the three phrases 'It's no big deal,' 'it might hurt a little,' and 'great job!' These aren't new to me because when I was younger, I would watch them if I needed a test or something. Actually, I still watch them now if I need a test I'm not firmiliar with. Anyhow, one film refered to all the children who got a needle as 'super patients.' So since I give myself shots twice a week, am I an 'extra super patient?' Joking aside, it was nice to see how nurses helped children find coping techniques when they were getting needles and such. I like how holding the child down whilst they cry and try to kick is no longer the only thing we can do for the nervous child- or adult. I've seen videos of kids having Methotrexate or Enbrel injected by their paren...

I've had a lovely start to the year, if I do say so myself. One of my best friends came and slept over for New Years, and though we didn't do much of anything aside from watching Youtube videos and listen to music, it was nice to have company. I was pleased when I woke up with less morning stiffness than usual. I spent the first day of the new year doing positively nothing. Well, not nothing. We watched Doctor Who, Youtube videos and just hung out in pyjamas until noon. Hey, that's not a bad way to start off the year if you ask me. I'd like to do more of that, if I ever had the time.