(This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com
A Life With Juvenile Arthritis Is Still a Happy Life: Juvenilearthritisnews.com
- Get link
- X
- Other Apps
(Resharing this from 2021)
When I first started this column, I had so many things I wanted to share with families coping with juvenile arthritis (JA). I’ve written about everything from making home injections less painful to ergonomic backpacks. As this will be my last column, I wanted to share the most important thing I’ve learned over the years.
The most valuable piece of advice I can pass on has nothing to do with treatments, doctors, accommodations, or arthritis hacks. It’s that you need to hold on to hope and remember that a life with JA can still be a happy one. Even if the future looks a little different than you expected.
- Get link
- X
- Other Apps
Popular posts from this blog
The Physical Therapists I Have Had
I've had a wide variety of physical therapists in my time. My first was a young woman. I had to go to Physical therapy for a few weeks to recover from a flare when I was eight. She was very nice, and I don't remember too much actual 'work,' because mostly it seemed like we played games and such. :) My next physical therapist came when I was about twelve. She was an older woman who always started out sessions by loosening my hip. She was very nice indeed, though she did not tolerate when I started giving up the last few minutes of the session: I had to be giving way more than humanly possible at ALL times. Sometimes I wondered if this was like military training. I had another physical therapist around that same time. He was an older man and very kind. I remember we had a lot of laughs. After he taped my feet so I wouldn't be so flat footed, he informed me I could stop walking like a robot. I only saw him a handful of times, though I did like when I got him. ...
I'm Nothing but His Toy
I've been doing a lot of writing on this blog about why the past few months were so difficult for me. But this is, by far, the most significant thing that happened to me. While I'd like to say this is something that is 'over and done with,', I can't: This is still something I'm dealing with. I'm actually nervous to share this post so publicly because I'm scared of the responses I'll receive. Please try to understand. Fall semester was supposed to be amazing. I was going to hang out in all my favorite places with all my favorite people. But instead, it ended with me afraid to leave my room and almost completely isolated. My perfect semester was interrupted by him . I don't know if he likes me or is obsessed with me, but regardless, I find he likes to be in my company. Often, without my knowledge. He's walked behind me and followed me home. Sometimes, he sees me approaching my apartment building, sprints to the entrance and waits for me...
I Don't Talk About Having Psoriatic Arthritis: Psoriatic-Arthritis.com
Ironically, for someone who shares my medical experiences online, I am a very private person in real life. There are some details about myself I'm quick to share, like being a crochet enthusiast! But there are several things I keep private, one of them being that I have psoriatic arthritis (PsA). Click here to read the full article at Psoriatic-Arthritis.com.

Comments
Post a Comment