The Girl With Arthritis

(Resharing this from 2021)  When I first started this column, I had so many things I wanted to share with families coping with juvenile arthritis (JA). I’ve written about everything from making home injections less painful to ergonomic backpacks. As this will be my last column, I wanted to share the most important thing I’ve learned over the years. The most valuable piece of advice I can pass on has nothing to do with treatments, doctors, accommodations, or arthritis hacks. It’s that you need to hold on to hope and remember that a life with JA can still be a happy one. Even if the future looks a little different than you expected. Read the full article at juvenilearthritisnews.com

 I have been told I'm a patient person when it comes to dealing with other people. I especially received a lot of compliments on my patience when I was in college and worked as a tutor and as a teacher's assistant. I loved working with students, appreciating their effort and dedication to learning, even when it was hard or took awhile. Why, oh why, isn't it easy to be patient with myself? I can acknowledge that I have psoriatic arthritis (PsA) and should be patient with myself, especially during flares. But I also have a life and responsibilities to care for, and I can't just wait around for better days. Click here to read the full article at Psoriatic-Arthritis.com.

Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Click here to read the full article at Psoriatic-Arthritis.com.

  I find myself struggling socially now than I did at any other age. There are times when being a working young adult with psoriatic arthritis can be totally isolating. Even though I've been chronically ill since childhood, I found it was so much easier to maintain relationships back in high school and college. I used to always be around friends, hanging out in class and our dorms. I also had a summer vacation to work part-time, relax on my days off, and hang out with friends in the evening. Read the full article at psoriatic-arthritis.com

 It can be hard to be an introvert. There have been times when I come away from a social gathering completely drained. And when asked, sometimes everything in me wants to say 'no' to hanging out with others so I can enjoy spending time by myself. Having psoriatic arthritis seems to heighten my introverted nature. While there are times that I don't want to go out, there are many more times that I would like to, but I don't feel well enough. Read the full article at psoriatic-arthritis.com

Fatigue is a noteworthy symptom of PsA. With fatigue, most people immediately think of its physical effects, but it's just as important to mention the mental impact as well. Fatigue is a symptom that precedes and coincides with my flares. So not only does it hurt to get around, but I physically feel like I can't. Personally speaking, fatigue has had a profound effect on my life. In addition to my body being tired, so is my brain. My brain feels fried, and I drop the ball... a lot. When I wake up with some energy, I know the worst of it is over. Read the full article at psoriatic-arthritis.com.

I was lucky enough to have about a year-and-a-half-long remission from psoriatic arthritis (PsA) - and it was just as you would think - absolutely fabulous. It fell right around my senior year of high school and first semester of college, letting me spend those times like any other teenager. But it would be a lie to say PsA wasn’t still a concern during this blissful period. Click here to read the full article at Psoriatic-Arthritis.com.