Posts

Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com

How I Make Working in an Office Slightly Easier: Bezzy PsA

 When you have PsA, it can take trial and error to make the office environment work for you. Here are my tips for staying comfortable and focused. I come from a family of tradespeople, nurses, and people in other professions that keep you on your feet. So, as you can imagine, I try to keep it to myself just how exhausted I am when I come home from my office job. Due to my juvenile-onset psoriatic arthritis (PsA), I initially picked an office-oriented career track. I also went to a vocational high school, where I tried hands-on careers and quickly found I had difficulty handling labor. Both of those factors sealed my fate. Read the full article at Bezzy PsA.

Psoriatic Arthritis Doesn't Discriminate by Age: Psoriatic-arthritis.com

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  "You're so young; it can't possibly be that bad." I can't tell you the number of times someone told me that after I disclosed my juvenile-onset psoriatic arthritis diagnosis. No matter how much I explain that my condition is caused by my immune system going haywire, people hear the word "arthritis" and associate its severity with age. Such comments are hurtful as well as problematic. Read the full article at psoriatic-arthritis.com

Isolation Goes Beyond Being Unable to Attend Events: Bezzy PsA

 Living with a hidden disability can be isolating and lonely. Here’s how I address the challenges while finding support and setting boundaries. Have you ever been in a room full of people yet felt alone? I have many times. I remember being at a birthday party during a horrible summer downpour. My psoriatic arthritis (PsA) was flaring at the time, but the humidity and low pressure system made things worse. I was trying to keep it together, but I knew I came off as rather anti-social. I felt separated from all the people in the room, my mind drifting from pain and only occasionally picking up on the conversation being had right in front of me. And the worst part? There wasn’t anyone there who I felt comfortable to ask for help. Read the full article at Bezzy PsA.

Debating When To Call the Doctor: Psoriatic-Arthritis.com

"Call if anything changes," my doctor will say at the end of my appointment. Hearing that is such a friendly reminder. Having a good relationship with your rheumatologist is vital for anyone with arthritis. It's so important to be able to reach out and get a response when you need help. But, when you live with psoriatic arthritis (PsA), that advice can be a little challenging... Click here to read the full article at Psoriatic-Arthritis.com.

Psoriatic Arthritis and Mental Fatigue: Psoriatic-arthritis.com

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Fatigue is a noteworthy symptom of PsA. With fatigue, most people immediately think of its physical effects, but it's just as important to mention the mental impact as well. Fatigue is a symptom that precedes and coincides with my flares. So not only does it hurt to get around, but I physically feel like I can't. Personally speaking, fatigue has had a profound effect on my life. In addition to my body being tired, so is my brain. My brain feels fried, and I drop the ball... a lot. When I wake up with some energy, I know the worst of it is over. Read the full article at psoriatic-arthritis.com/

Therapy Helps Me Manage My Psoriatic Arthritis: Bezzy PsA

Therapy is not only beneficial to my mental health, but it’s also helped boost my physical health.  Treating my psoriatic arthritis (PsA) hasn’t been a straightforward process. I wish it were as simple as seeing a rheumatologist, being prescribed medication, and being pain-free. Even though I’m on a medication that works for me, I still deal with chronic pain and fatigue. Taking care of my PsA has required a whole-body approach, balancing nourishment, exercise, rest, and mental wellness. I found therapy sessions have greatly helped me manage my PsA.  Read the full article at Bezzy PsA.

Feeling Foggy During Psoriatic Arthritis Flares: Bezzy PsA

 Brain fog is common for people with autoimmune conditions. Here’s how it’s affected my life and the ways I manage it. I’ll always remember how badly one of my college projects turned out. I was in the midst of a horrible psoriatic arthritis (PsA) flare and felt out of it. My poster was fraught with spelling errors. While presenting, I couldn’t remember the words I needed and couldn’t quite get to the point I was making. Thank goodness it didn’t count for much toward my grade! My flare brought along a host of symptoms: pain, stiffness, and horrible fatigue. It was hard to concentrate on anything except the pain and how tired I felt. Even when I gave my best effort, my work wasn’t great, and I had trouble learning new concepts. Thanks to brain fog, this would be the first of many projects I would struggle through. Read the full article at Bezzy PsA.