Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com
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Mothers' Juvenile Arthritis Pain

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There are days I forget that even if they don't have it, Arthur is hurting a lot of people. But if there is anyone who is hurt by my Arthur more than me, it's my mum.

It's often said having a chronically ill child is a full time job.  And I believe it completely. Whilst they may not experience the pain their child goes through physically, parents see their child in pain and ill more than most people can imagine. They experience good days and bad days. And they are the ones who have to comfort and stay calm for their child through stressful and negative periods. It's heartbreaking.

I tend to forget how much my mum is hurting too. Every time I realise it, it hits me like a ton of bricks. Every time I see her eyes get watery when the Enbrel causes pain. Every time someone complains about having a little ache and she tells them her daughter has juvenile arthritis. Every time I realise she plans things around my abilities so I can have fun too. Everytime I see her fight to get what I need to be without pain. I could go on and on but I'd rather not.

To all the mums, dads, siblings, and supportive family and friends of people with arthritis- thank you. You're so strong for carrying the pains that arthritis gives. We couldn't do it with out you.

Comments

  1. AriannaJune 12, 2013 at 6:39 AM

    Lovely post, Elizabeth. My mom is amazing, too! I hate that my RA hurts her, too, but I'm glad she hasn't left me to face it alone.

    ReplyDelete
    Replies
    1. ElizabethJune 12, 2013 at 2:25 PM

      Thank you. :)
      Mums' who have kids with arthritis are pretty amazing. :)

      Delete
  2. JIAmomJune 18, 2013 at 1:57 PM

    Beautiful post, Elizabeth. Your mom must be so proud of you!

    ReplyDelete

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