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Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com

What Goes Around Comes Around

Everyone in my school has been sick this winter, which isn't surprising. While running noses and sore throats are common, we have worse things around. So many kids have gotten pneumonia and the flu. I'm lucky I got off with only a cold or whatever it was, but I'm not out of the woods. With Methotrexate, my immune system isn't working much to help keep me healthy. Wish me luck. Anyway, I had a wonderful day. I seemed to have gotten along with everyone swimmingly, other than this one boy who thinks I'm insane, or so I get the feeling. I love feeling everyone can get along. In fact, everyone seemed to be in a good mood! During a break time a group of boys started down the corridor whistling 'The Chicken Dance' and clapping along. Rest assured, today has been a comical day. The biggest joke being the amount of school work I have to get done.

"You Should Live at the Doctor's."

That's the biggest joke between my friends and I. They find it amazing how often I'm at the hospital: Once a month to see My rheumy, once a month to get blood drawn, and sometimes because I'm ill. Since I take the day off to see my rheumatologist as I have to travel by train to see him, I naturally have many funny or amusing stories for my friends to help pass the time in school. One of my very good friends understands the severity of Arthur and he has said the most memoriable things about it: "One day I'm going to make a charity for whatever you have so it can get cured (Me: 'Awww') so I don't have to hear it anymore." "Why don't you just live at the hospital?" Granted, these sound very mean but they were said comically and I was dieing laughing. Honestly: He's one of my best friends and we are always teasing each other. Speaking of which, I'm seeing my rheumy soon: Hopefully he'll say I'm getting closer to re...

Look at the Time

I haven't posted in awhile. Being sick takes a lot out of me and takes me a long time to recover. I had taken naps after school the few days after I broke my fever and that means I'm still very sick: I don't take naps unless I'm very sick. Anyway, time has been slipping away from me. January eats at me: it's long with nothing there. Luckily I'll have a school holiday in a few weeks but until then time will fly and be slow at the same time. "A time for peace I swear it's not to late."

Better Much

I'm finally better and back in school. My fever was really bad though: I was 104.5 for a few days straight until it broke Sunday. Baking like that isn't good for your skin and as a teen with acne, I was getting over my pimples and only had one clearing up but the fever caused me to get a huge break out on my face, neck, chest and all over my scalp!!! It's so painful to brush my hair! I had a sore throat but now it's fine. Now I'm a-okay and back in school. Granted, I get dizzy but it passes. I draw sketches all the time, I recently started using charcoal. Who wants to see?

"Mummy... I'm Sick..."

It's true. I'm sick: Sore throat and fever. The works, it's going around the school: everyone has a sore throat, fever and stuffy nose. I'm lucky: I didn't get the nasial problems. You know I'm sick when I take a nap, and boy did I take a nap this afternoon. In fact my mum started to CONVINCE me to stay home from school tomorrow: I kept saying "No, I have to go to school. I have work to do."

I Don't Want to Be Liz: My Name is Elizabeth, Not Liz.

I think the title tells you what is on my mind. I don't like being called Liz at all. It started when I was 10 and just hasn't stopped. 'Liz' is a name I associate with fiesty, sassy. That sort of thing. I am not a Liz, I am an Elizabeth: It's girly, soft and just me. It's what I like best. My friends call me Liz, but sometimes they switch off and call me Elizabeth. We call Elizabeth the magic word becasue I get happy when they call me that. My mum calls me Elizabeth. My family calls me Liz. They didn't before I was ten and heard my friends call me Liz. Now they only know that as my name. I hate it. What am I supposed to say? Elizabeth Facts: *There is a book all about a girl who doesn't like her nick name, only her real name Elizabeth. *Elizabeth Taylor turns in her grave everytime she is called Liz Taylor: She only liked Elizabeth too. *No one ever dared call the Queen of England 'Queen Lizzy' or something. *Most girls I know with th...

Sticks and Stones May Break My Bones, but Chairs and Canes Delight Me

The title is rather self explanitory: I'm in a rather humourous mood at the moment (but  really, when am I not is what my friends would be  saying). And it is also truthful. I do not like walking and when I walk (1) my back muscles tighten, (2) my knees pop, click and get very stiff, (3) my hips feel weak and unsupported, and (4) my ankles feel like they have nails inbedded inside. Shopping trips are fun only at first, which a teenage girl should never have to say, and many other things. Sooo... just to ensure my pleasure, during holidays I often use a rented wheelchair to get around. It's much easier and I tend to have more energy for fun things to do as they day progresses. Also, this year I am getting a cane to help when I need to get up. A collapsable one so I can take on planes and such. I had asked around and most people say they help with the leg joints but not the back, but any joint with less pain is worth it for me!