Don't Judge Me for My Good Days: Psoriatic-arthritis.com

-
Image
  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com
Post a Comment

Truth Is

-
Updated October 2022

Truth is, I take powerful medications to treat Arthur. It's called Methotrexate and in much high doses it is used to treat cancer. In small doses it is used to treat arthritis - it is not considered chemotherapy when used for arthritis. We use it to treat arthritis because it suppresses your immune system, which does not work properly in many arthritis cases, except in the case of Osteoarthritis (arthritis you get due to wear and tear).

Though I take it in small doses once a week in pills (people with cancer can take it in pills too), it does not mean I do not get the side effects. Sure, it's much less worse than a person taking it in high doses but no doubt it's still there. I've lost some hair (most people won't lose all their hair), especially eyelashes much to my annoyance. I get mouth sores too and whilst they don't hurt, I do get that odd taste in my mouth. I get nausea too, as most people do. Fatigue happens too. In fact, when I first started MTX again in August, I  was in Disney World, and I lost my appetite. I was so upset because we had reservations at all my favorite restaurants and I could barely eat any of my favourite foods.

Also, it is not very well known that Methotrexate can cause emotional changes: Depression, anxiety and mood swings. Yes. I once became very depressed for a whole school year because of if, and I only got better after having a break for a few weeks. Now, I've gotten both depression and mood swings. I get my good and bad weeks. Hopefully, Christmas will be a good week.

Anyway, my point is Arthur needs strong medications. I would be trapped in my home unable to do anything, or just be a kid. 

Comments

Post a Comment

Popular posts from this blog

The Physical Therapists I Have Had

-
I've had a wide variety of physical therapists in my time. My first was a young woman. I had to go to Physical therapy for a few weeks to recover  from a flare when I was eight. She was very nice, and I don't remember too much actual 'work,' because mostly it seemed like we played games and such. :) My next physical therapist came when I was about twelve. She was an older woman who always started out sessions by loosening my hip. She was very nice indeed, though she did not tolerate when I started giving up the last few minutes of the session: I had to be giving way more than humanly possible at ALL times. Sometimes I wondered if this was like military training. I had another physical therapist around that same time. He was an older man and very kind. I remember we had a lot of laughs. After he taped my feet so I wouldn't be so flat footed, he informed me I could stop walking like a robot. I only saw him a handful of times, though I did like when I got him. ...
Read more

I'm Nothing but His Toy

-
Image
I've been doing a lot of writing on this blog about why the past few months were so difficult for me. But this is, by far, the most significant thing that happened to me. While I'd like to say this is something that is 'over and done with,', I can't: This is still something I'm dealing with. I'm actually nervous to share this post so publicly because I'm scared of the responses I'll receive. Please try  to understand. Fall semester was supposed to be amazing. I was going to hang out in all my favorite places with all my favorite people. But instead, it ended with me afraid to leave my room and almost completely isolated. My perfect semester was interrupted by him . I don't know if he likes me or is obsessed with me, but regardless, I find he likes to be in my company. Often, without my knowledge. He's walked behind me and followed me home. Sometimes, he sees me approaching my apartment building, sprints to the entrance and waits for me...
Read more