A Lonely Disease
It's odd how in a world of billions of people, one can feel so lonely.
This is particularly odd for me. I go to school. I meet up with people in the city. This blog keeps me contected with lots of great people. And Since I have access to the Internet in general, I can talk with virtually anyone, anytime I'd like without having to leave my spot on the couch! So where is this loneliness coming from?
I guess it's just from feeling so distant from everyone, especially my friends. As many a person before me has said it, I declare "They don't 'get' me." The arthritis doesn't help at all. I want to scream in frustration that they don't know and they don't care. And I know others have felt the same: if there is one most misunderstood thing in this world, it's pain. And if there is one thing that can bring those in pain together, it's the feelings of being alone and misunderstood.
I don't really know how to conclude this post. I could write about when people tell me that my pain is no big deal or in my head. I could tell you the stories of being forgotten about on various occasions. I'm even tempted to write about the times that people have touched my back when I specifically asked them not to because its painful. But I think we all have our own stories to tell. But more importantly, we have our reasons to unite.
I have the same feeling. I have been dealing with RA for three years and with no new improvement, I wake up and go asleep with drugs. I had to leave my job due to illness and now I am scared that my social security disability my end. I feel so alone, my family lives in different counties which makes this illness even harder to deal with.ReplyDelete
Hello there. I'm terribly sorry to hear of the struggles you face because of RA: I can only imagine its very difficult. I know it's worse to face it alone. You are a very strong person, and I know you have the strength and courage that could move mountains. Please know that even if we are not in person, there are others with arthritis and autoimmune diseases who would be there for you. There are so many support groups on the Internet and Facebook (I can send you the link to the wonderful one I'm in). If you'd ever like to talk, my email is right on my contact page. I will be keeping you in my thoughts.Delete