Don't Judge Me for My Good Days: Psoriatic-arthritis.com

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  (This was posted Feb 16, 2024 - but I thought it was such a great topic that I wanted to repost it.) Please don't judge me based on my good days. Looks can be deceiving for someone with a chronic illness. What looks like a good day might actually be a good day. Or it might be a good few hours. Or it could be someone doing their best to function through the pain. You don't honestly know what someone is going through, especially when they have lived with the pain for a long time. You'd be surprised how much pain people can learn to smile through. Read the full article at psoriatic-arthritis.com
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Cold Joints

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I am cold all the time. I get shivers down my spine all the time that give me muscle spams that are bad enough to get noticed. Which makes people stare, of course. 

I know very many people with autoimmune diseases that struggle with the cold. I am one of those people. Its not just that you're a bit chilly, its that the cold is actually painful. One time, despite being on holiday in a very hot and tropical area, I still wanted my jumper because it wasn't quite hot enough. My mum wouldn't let me have it: she told me I'd overheat. She was probably right. And, despite knowing its horrible for your skin, I bathe in hot water ONLY. Cold water is painful.

I don't really know why it seems people with autoimmune arthritis and related diseases seem to be affected by cold more. There doesn't seem to be much research out there about why feeling freezing is so common (if you come across any, let me know!). I think two of the best things you can do for a person with Arthritis, lupus or anything like that, Is to offer an extra jumper or blanket when it's cold and to never force them into a swimming pool.

Comments

  1. RArainbowApril 10, 2013 at 12:01 AM

    I think part of it may be due to the low hemoglobin levels (anemia) of many persons who have autoimmune forms of arthritis. You can read more here http://anemia.org/patients/information-handouts/arthritis. The next time you do blood work, ask your doctor about it. Keep warm and all the best! :)

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